Killing Tracey Titmass by Estelle Maher

I was recently invited to take part on the tour for the humorous fiction novel Killing Tracey Titmass by Estelle Maher @EstelleMaher @LornaMcCannPR run by @lovebooksgroup #lovebookstours. It mirrors the author’s cancer journey. This can be cathartic for fellow sufferers. You can follow the tour  this week.

The Blurb

Killing Tracey Titmass by Estelle Maher

Jo Kearns has breast cancer.

While juggling her job, her boyfriend and the cancer, she discovers that her home has been invaded by Tracey, her tumour in insidious human form.

Jo’s diary tells the story of her battle to evict the malignant Tracey from her house and the disease from her body.

Based on Estelle Maher’s own cancer journey, this book is at times hilarious, at times poignant, but always unflinchingly honest and inspiring.

The Extract

Thursday, 3rd January 2019

Being in work today was a drag. There was hardly anyone in, and I wondered if it was worth it. We don’t print a newspaper for two weeks over the Christmas period. No one wants to work, no one wants to advertise, and no one wants to deliver the things. Any other time of year, we have a list of kids who are eager to take on the job of delivering the free weekly newspaper. But that list is quickly devoured when they realise what the sheer weight of a hundred papers is and that not every Wednesday—delivery day—is dry and sunny. By December, the list is exhausted, and we are relying on retired members of the community or children from strict parents, and the last time I saw one of those kids they were riding a BMX bike with their mullet blowing in the wind.

Most of the chat today was about Mia’s wedding. Some were a little put out that they didn’t get an invite. Apparently, working with someone for over five years qualifies you for an invitation, even though they never interact outside of the office, take lunch together or know where each other even live. You don’t have to know my life story to be my friend, but some of the basics you should know are as follows:

1. The area I live in. You don’t have to know my address—a point in the general direction is enough for me.

2. My attitude to marriage and children. That’s a no to both.

3. My propensity for a drink. I like to drink. I make no apologies for my consumption.

4. My attitude towards salad. It’s not a meal.

5. My attitude to Frankie Boyle. He’s not funny.

6. My attitude towards hot tubs. It’s simply having a bath with your mates. People think the fact that you have a bottle of fizz and do it in the hotel car park makes it acceptable. It’s not.

If you know most of the above about me, then you’re likely to be my mate, and if I ever get married, then you’re in with a high chance of a wedding invitation.

The Author

Estelle Maher was born in the heart of Liverpool, England. After spending her teens in rural Dorset, she returned to the North of England and now resides in Wirral with her husband, 2 children and 3 dogs.

Her career has been varied. But in her spare time, she’s quite at home with a paintbrush upcycling furniture. She also writes a blog in her spare time, The Secret Diary of a Middle-Aged Woman, a humorous snapshot of random thoughts.

Estelle has been writing on and off for a number of years and writing the blog was her first step in writing for an audience that was wider than her and her husband.

Her debut novel, Grace & The Ghost, won a Best Spiritual Fiction Award 2018 and her spin-off Angel’s Rebellion also became an Amazon bestseller.  Her third novel, The Killing of Tracey Titmass, is based on her own cancer journey. Told in diary form, it offers an alternative way of accepting cancer.

Estelle is now in recovery and still smiles every day.

Buy Link 

https://amzn.to/385DRcH

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Symptoms of Breast Cancer.

Breast_Cancer_1Breast cancer affects both men and women. However, breast cancer has been the most common cancer in the UK since 1997, but is rare in men. It is by far the most common cancer among women in the UK (2011), accounting for 30% of all new cases of cancer in females. In 2011, there were 50,285 new cases of breast cancer in the UK: 49,936 (99%) in women and 349 (less than 1%) in men. Female breast cancer incidence is strongly related to age, with the highest incidence rates found in older women. This supports a link with hormonal status. In the UK between 2009 and 2011, an average of 80% of breast cancer cases were diagnosed in women over 50. Indeed, around a quarter (24%) were diagnosed in women aged 75 and over. I therefore find it very frightening that many older women ignore the risks of contracting breast cancer and are ignorant of the symptoms of the disease, with the exception of finding a lump. Finding a lump may be the most common sympton of breast cancer, however, in many cases finding a lump will be one of the last symptoms to become obvious, especially if the tumour is seated deep in the breast tissue. This is important because the earlier the disease is treated,the more successful that treatment is likely to be.

Some of the signs and symptoms of breast cancer include:

1) a lump in the breast
A lump in the breast is the most common symptom of breast cancer. Most breast lumps are not cancerous. They are usually fluid-filled lumps,cysts or a fibroadenoma, which is made up of fibrous and glandular tissue. But it is important to get a lump checked by a doctor straight away. If a lump or other symptoms is caused by breast cancer, the earlier treatment is received the more successful it is likely to be.

2) a change in the size or shape of the breast
The warning signs of breast cancer are not the same for all women. One of the common signs are a change in the look or feel or size of the breast. Breast enlargement alone is not necessarily a sign of inflammatory breast cancer. I see a lot of women who are worried about a change in breast size, and inflammatory cancer is rarebreast size

3) dimpling of the skin or thickening in the breast tissue
You may become aware of dimpling or tethering of the skin of the breast during a self-exam. It is an important part of the self exam to look in the mirror and look for a dimple. The breast should be outwardly round—it should curve outward and not pull in. If you have had breast surgery before and you have some scars, you might find that the breast will pull in around a scar. Of course, this is a different situation. A dimple is a pulling in of the skin, and it may occur when you raise your arm or lean forward. When you lean forward and raise your arm, the breast should stay outwardly round; it should not pull back in. That may be a sign of cancer, and it should be checked.

4) inverted nipple, a nipple that’s turned in
Every body is different. Some people are born with inverted nipples. That is not a worry or unusual for them. However, if you notice a change in your breasts that result in development of an inverted nipple, so you were not born with one,and the nipple cannot be drawn out, this should be checked by a doctor. it may suggest a lump behind the nipple that is pulling it in.

5) a rash on the breast or the nipple
Although tumors are the most common symptom of breast cancer, they are certainly not the only symptom. Women with a rare form of the disease called inflammatory breast cancer can develop a red, pink, or purple rash across part of their breast. The skin of the breast might also appear puckered, like the skin of an orange. If you notice symptoms like these, have them checked out by a doctor right away. Inflammatory breast cancer can spread quickly.breast cancer rash
6) discharge or bleeding from the nipple
Nipple discharge is a normal part of breast function during pregnancy or breast-feeding. It also may be associated with menstrual hormone changes. It appears spontaneously and involves a single duct. Although the bloody discharge may resolve on its own, this situation requires evaluation with an ultrasound of the area behind the nipple and areola. If the ultrasound shows a lesion, you may need a biopsy to confirm whether it is a papilloma or something more sinister. Although most often, nipple discharge stems from a benign condition. However, breast cancer is a possibility, especially if it is combined with one or more of the following: you have a lump in your breast, only one breast is affected, the discharge contains blood, yhe discharge is spontaneous or the discharge affects only a single duct.
7) swelling or a lump in the armpit
An armpit lump refers to the enlargement of at least one of the lymph nodes under your arm. Lymph nodes are small, oval-shaped glands that are located throughout the body and play an important role in the immune system. Most lumps are harmless and are usually the result of abnormal tissue growth. However, armpit lumps can be related to a more serious underlying health problem. Any unusual lumps should be evaluated by a doctor. Armpit lumps can occur in men and women of all ages. However, finding an armpit lump is most alarming for women because it may indicate breast cancer. Women should perform monthly breast exams and report any lumps to a doctor right away.Note that breasts undergo hormonal changes during the menstrual cycle, and may tend to feel more tender or lumpy during this time. This is completely normal. For the most accurate results, perform breast self-exams about one week after your period starts.

The advice you must consider is this: whether man or woman, old or young, if you become aware of a change in the area of your breasts seek medical attention sooner rather than later. Time is valuable: time is life.

Valerie Penny

Dealing with Cancer in the Workplace by guest author Ryan McChrystal

This article, Dealing with Cancer in the Workplace by Ryan McChrystal first appeared on Tuesday, 10 March 2015 in http://elitebusinessmagazine.co.uk/people/item/dealing-with-cancer-in-the-workplace

Serious illness – particularly cancer – can have a devastating impact on your employees and your business, therefore it is essential to have a plan in place that ensures the best way forward for all concerned

Dealing with cancer in the workplace

Cancer isn’t an easy thing to discuss. There is no shame in admitting that. However, with around 750,000 people of working age with some form of it in the UK – representing over a third of the 2 million people living with the condition – it is wise to think about your approach now before you, as an employer, have to deal with it. With people living longer and retiring later, the numbers of people in the workplace diagnosed are only going to increase. Cancer is just one – and certainly the most emotive – example of the serious illnesses that could impact on your employees, their attendance and productivity.

“The pressures put on an employee with cancer have a direct effect on their ability to manage or even recover,” says Elliott Hurst, director of health consulting at AXA PPP Healthcare, one of the biggest UK health insurance providers. The physical and emotional strain of a serious illness can be severe and, when you combine that with the potentially damaging financial impact, the result can be devastating. But that’s not to say a diagnosis automatically leads on to periods of absence.

“From an employer’s perspective, it is better to have your experienced and valued employees contributing to the workplace in some way, shape or form than not and with proper planning this can be achieved,” says Hurst. Therefore, an effective workplace policy should be in place to ensure you are best equipped to deal with cancer and other serious illnesses. As with all good policies, it is best to begin by amassing all the relevant information that’s available, including a full understanding of the law. As an employer, you are legally obliged to make workplace adjustments where appropriate, just as you would with any other disability. Access to Work is a specialist disability service delivered by Jobcentre Plus, which gives practical advice and support that may be able to help with the cost of making workplace adjustments.

“It is good to have a better understanding of the illness your employee is suffering from. Cancer, for example, is not a single disease with a single cause and a single type of treatment,” says Hurst. “Each cancer experience is different, but having a little knowledge can help you as an employer to better understand what the person is going through and how best to support them.”

A government white paper in 2011 suggested that employers need to do more about the health of their employees. Dr Gordon Wishart, a cancer surgeon and medical officer at HealthScreen UK has seen a major rise of employers offering cancer screening as part of their benefits packages. “Companies are engaging with us to explore early cancer detection for their employees, which in many ways is adding to the already existing employee benefits that are available through employers and in some cases that’s been completely sponsored by the company,” he says.

With most cancers, if you pick it up early it requires less treatment, which is a better outcome for employees and for the employers. “It means less time off work, and getting that employee back to their desk as soon as possible and back to being an efficient, productive member of the team,” says Dr Wishart. A screening by HealthScreen UK only costs around £100 and if it is paid for through a salary sacrifice, it becomes more tax efficient and an employee will only pay around £50-60, or about £5 per month.

Often a small business won’t think about the issue of cancer until it is raised by an employee, which can take managers and HR by surprise. Therefore they are often nervous and uncertain about what to say. Good quality conversations between employee and employer are essential to understand their requirements and plan for the best possible support.

“It is important for employers and managers have some kind of training or insight that allows them to understand how much a serious illness like cancer can really turn somebody’s life upside down,” says Dr Jill Miller, a research advisor at CIPD. “Have an awareness of the emotional and financial strain it puts on people and that how you respond and support employees has a huge impact on both their morale and on the rest of the workforce as they will see the organisation is a good place to work.”

There are a few things to bear in mind when having these conversations. “It is best for the manager, the employee and HR to get the expectations out at the beginning,” says Dr Miller. “It is important to talk about who the employee wants to know among the business and how they want other people to react. Do they want people to talk about it, or do they want them to act normal and talk to them as they always have done?”

Needs will differ from employee to employee and from cancer to cancer. Different cancers will have different paths and treatments will have different demands on people, so constant conversations with employees to get updates on their progress is essential to know what’s going on. “It’s important to think about what support and flexibility you can offer to help people stay in work,” advises Dr Miller.

Employers also need to understand that recovery is a process and that it takes time. Legally, they have a duty to make reasonable adjustments to support a return to work, which will depend on the circumstances, including practicality, cost and the extent to which an adjustment will be effective in alleviating any disability. Adjustments might include offering lighter duties or allowing extra breaks.

These days, many people are cured of cancer or are able to live with it for many years. Some people may have short or long-term side effects from the illness or its treatment. Therefore, they may continue to need support after their treatment ends. “Many people tell us that that work can help to restore a sense of ‘normality’ after a cancer diagnosis. Try to find out a little about the type of cancer your employee or the person they are caring for has and what the effects of treatment are likely to be,” recommends Hurst.

Work contributes to financial independence, provides a sense of purpose, creates structure in our lives and is a lifeline back to normality, wellbeing and recovery for those suffering. For Dr Miller, it is essential to make the transition back to work as easy as possible. “It is also important to think about employees caring for those with serious illnesses and how to respond to employees who are supporting a family member or close friend who has had a cancer diagnosis.”

There is comprehensive legislation in place to support a successful return to work. Together, the Equality Act 2010 and the Disability Discrimination Act 1995 provide protection from discrimination. Everyone with cancer is classed as disabled from the point of diagnosis for the rest of their life, and their employer or a prospective employer must not treat them less favourably for any reason relating to their cancer. All areas of employment are covered including recruitment, promotion, training, pay and benefits.

Coming back to work can be very difficult for a patient. A recent study by Macmillan, the cancer charity, showed that 57% of survivors who were in work when diagnosed had to give up their job or change roles due to their illness. This means the total loss in productivity of survivors unable to return to paid work in England was estimated, in 2008, to be as high as £5.3bn. You must be prepared for such a possibility because small businesses often rely on teams that, while few in number, are high in skills and experience, so the impact can be particularly devastating.

If an employee comes back to work, which is often the case, there are a number of steps that can be taking to make things easier. This includes implementing a standard, phased return to work plan. You should also provide regular catch-ups to check all is working well.

More than anything, a clear policy is key to coping with cancer in the workplace. But it’s important to remember that with the devastating effects of serious illness on employees, there are no quick fixes.

Ryan McChrystal

How Cancer Will Affect Your Business by guest author Professor Gordon Wishart

gordon wishartProfessor Gordon C Wishart MB ChB MA MD FRCS FRCS FRCS is a graduate of The University of Edinburgh, Scotland and consultant breast & endocrine surgeon at Addenbrooke’s Hospital, Cambridge, England.

It is calculated that, currently, one in three people in the UK will get cancer of one type in their lifetime. Cancer charity Macmillan estimate this will rise to one in two by the year 2020.

New methods used by Cancer Research UK to calculate these figures, however, suggest that the 50 percent level of cancer incidence may already be upon us. A recent survey conducted by Cancer Research UK also revealed that cancer is now the UKs number one fear, ahead of being in debt, old age, being the victim of knife crime, car accidents, having a heart attack or losing a job or home.

This, of course, is not good news for anyone – but some employers may still be wondering what this has to do with them. The fact is, whether employers choose to take action or not, cancer is going to have a serious impact on them, their workforce, and their business. The NHS has identified that around 13,000 men and women die every year from work-related cancer – but the impact is not limited to areas of work that specifically put workers at higher risk. Of the 325,000 people diagnosed with cancer each year, over 100,000 are of working age, and estimates suggest that over 750,000 people of working age are now living with a diagnosis.

Alongside this, we need to consider the friends, spouses and families of employees. One does not have to be personally diagnosed with cancer to be hit by its effects; having to care for a loved one under these trying circumstances – not to mention the psychological impact of a cancer diagnosis – can also mean increased downtime among employees who are otherwise healthy.

Little wonder then that the Department of Health is asking employers for help to fight the massive cancer burden. On the positive side, there is a lot that employers can achieve, if they choose to act. The key is cancer screening and awareness in the workplace.

About Check4Cancercancer microscope

Check4Cancer Ltd. (previously known as International HealthScreen Technologies Ltd) started its existence in Cambridge in 2006 when the two founders Prof Gordon Wishart and Troels Jordansen met. The first BreastHealth UK clinic started at Spire Cambridge Lea in April 2008.

Today Check4Cancer offers 6 innovative different services for early detection of cancer. The services are:

BowelCheck BreastCheck GynaeCheck
LungCheck ProstateCheck SkinCheck

Above 6 services cover 90% of all new cancer incidence in the UK every year.

The services are supervised by a Board of Clinical Advisors; please click here for more details. All advisors are nationally renown  experts within each cancer area.

Throughout a network of over 80 clinics across the United Kingdom private individuals and companies can access these services. 2 of the life saving services (BowelCheck and GynaeCheck) requires no clinic but are based on home sampling.

Besides services for early detection of cancer Check4Cancer also operates the largest independent network of genetic counsellors and test. GeneHealth UK offers several cancer genetic tests ranging from gold standard BRCA 1&2 tests to innovative cancer panels. Pre-conception testing is being introduced during 2015.

Breast_Cancer_1With around 1 out of 2 Britons getting cancer over their lifetime cancer is a very serious issue for individuals and companies. On this background Check4Cancer is proud to be working with some of the leading companies to offer affordable services for early detection of cancer and cancer awareness services. Please click here for a list of such companies.

Check4Cancer is working according to ISO9000 and ISO270000, regulated by CQC, complies with the requirements of the Cyber Essential Scheme, registered with ICO is very proud to have 93% of our clients rating us ‘Very Good’ to ‘Excellent’.

Gordon Wishart

Life on Letrozole After Breast Cancer

letrozoleAfter completion of my chemotherapy and just as my radiotherapy started I required to start taking letrozole: just one 2.5mg tablet per day. A 2.5mg tablet each day for 5 years. This is because my breast cancer wasa type that needs the hormone oestrogen to grow. In women who have been through the menopause, the main source of oestrogen is through the change of sex hormones called androgens into oestrogen. An enzyme called ‘aromatase’ is needed for this change to occur. Letrozole works by inhibiting (or blocking) this enzyme. This reduces the amount of oestrogen in your body, which slows the growth of the cancer cells, should they recur. It is my fervent hope that they will not.

I am ashamed to say that I never read the information given with medication, although I know I should. The manufacturer’s leaflet will give more information about letrozole and a full list of the side effects which may be experienced from taking it. I have to take other tablets daily as well. So I take one 2.5 mg tablet of letrozole each morning with my other medication, although you may take letrozole at whatever time of day you find easiest to remember, but try to take your doses at the same time each day. This will helps to avoid missing any doses. You can take the tablets before or after your meals. If you forget to take a dose, take it as soon as you remember. If you do not remember until the following day, skip the missed dose. Do not take two doses together to make up for a forgotten dose. I suppose one tablet out of 5 years will not make much difference.

However, along with their useful effects, most medicines can cause unwanted side effects although not everyone breast-cancerexperiences them. If you have read other articles in this blog, you will realise, that my primary mind set is always that these things cannot happen to me. Of course, sometimes they can and they do. That is just life. Also, because I do not read the manufacturers leaflets, I did not know the side effects to expect. However, Letrozole has a raft of side effects and I seem to have been blessed with most of them. The common side effects are as follows:

1) Hot flushes and sweating: yes, I get this one! I thought it was my time of life, but no, I owe this joy to Letrozole so I try to keep cool by wearing light, airy clothes or in winter, I wear layers, so I can take them off as required.
2) Headache, muscle or joint pain: oh wow! I have this one in spades. You can ask your doctor or pharmacist to recommend a suitable painkiller but I do not like to take any more tablets than I have to, so I try to manage the pain with rest, hot water bottles or ignoring it before I give in to the painkillers. The dull ache of the joint and pain is a persistent, nagging pain that drains the drive and strength out of me. It is inescapable.
3) Feeling tired, weak or dizzy: Oh, you guessed, I find this side effect really, really debilitating. I simply cannot do all that I did before I got ill. Some days I cannot get up, some days I have to take a nap, sometimes I just cannot move. I get so indescribably weary and tired. I get cross with myself and irritated but it does not explain this side effect to say that I get tired. The tiredness makes me bone weary. My limbs feel heavy, my concentration is affected. My eyes cannot stay open. At other times I cannot sleep at night, so that makes me tired too. I do not drive or use tools or machines until I feel fit enough to do that.
4) Feeling or being sick, indigestion, abdominal pain: Hurrah! I do not get this one! I stick to simple meals, generally avoid rich or spicy foods and I am very careful about my diet.
5) Constipation: I occasionally suffer from this one but I try to eat a well-balanced diet and drink several glasses of water each day.I also drink copious amounts of tea, mostly English Breakfast tea, sometimes Earl Grey.
6) Diarrhoea: Nope, I do not get this one: if you do, remember to drink plenty of water to replace the lost fluids.
7) Appetite changes, weight changes, feeling depressed, hair loss, skin rash, swollen legs or feet, vaginal bleeding: I am blessed with some of these, the most immediately obvious is that my hair has become very thin. Sometimes I wear a hat because my head gets cold, my hairdresser is a magician and always makes me look and feel like a million dollars. The other one of these side effects that I have to cope with is depression. I have suffered depressionfrom depression for many years any way and now it is reasonably well controlled. It is just difficult having another potential source of that mental health problem.
8) High blood levels of cholesterol or high blood pressure. I do not suffer from either of these. I am lucky in that my blood pressure sits fairly low anyway and my doctor also arranges for me to regular have tests to check that these side effects are not rearing their ugly heads.

As I suffer with so many side effects of Letrozole, I have been offered the opportunity to change to another tablet. However, I have declined to do so. I know what the side effects of Letrozole are and I can cope with them, more importantly my long suffering husband knows what they are and he can also cope with them. So for the remainder of the 5 year period, I will cope and I will be grateful that I am being successfully treated for breast cancer. I am a lucky woman.

Valerie Penny

Risk of Recurrence of Breast Cancer

herceptin_drugMy body has endured surgery, chemotherapy and radiotherapy. As a result of this I have lost my hair and my energy. Still, that tumour the size of a baked bean is perceived as a threat. Its return must be further discouraged. My oncologist therefore insists on mammograms every six months and prescribes Letrozole. I must take one 2.5mg tablet each day for 5 years.

Breast cancer is often discussed as a general condition, but there are several different types that require different treatments. One way to distinguish breast cancer cells is through your genes. When you are diagnosed with breast cancer, your doctor will test the cancerous cells to determine their genetic makeup. My tumour had more of the HER2 protein in it than it should have had. HER2 is a protein that stimulates the growth of breast cancer cells. It can be found in your blood and urine. Sometimes it is referred to as a tumour marker. Tumor markers like HER2 cannot be used for cancer diagnosis, but they can provide other important information and the presence of HER2 helps the doctor predict how likely the breast cancer is to respond to treatment.

It is estimated that about 20 percent of breast cancers are HER2-positive. Younger women are more likely to be her_2_geneHER2-positive than older women. HER2-positive breast cancer tends to be more aggressive and to spread more quickly than other cancers. That is why it is important to find out if the cancer cells in your body contain this protein. If your breast cancer is HER2-positive, you have a much better chance of successful treatment with methods that target the HER2 protein specifically. Results show that those who tested positive for HER2 at an early stage of the condition (with tumours 1 centimeter or smaller) had a higher risk of recurrence. Researchers have also found that HER2-positive patients had a 77.1 percent five-year survival rate, with no recurrence. However, they also are
around five times more likely to suffer recurrence than those who were HER-2 negative and have close to three times the risk of recurrence of those who tested negative for HER2. So I am absolutely sure I want to discourage recurrence.

Tumours that are HER2-positive are more often associated with factors that increase recurrence rates. For example, HER2 tumours are more likely to occur in younger women and have higher nuclear grade. Generally, the higher the nuclear grade, the more aggressive the tumour. HER2 tumours are also more likely to show positive margins during breast surgery. Positive margins occur when cancer cells extend beyond the edge of tissue that is removed. HER2 tumours also have a higher likelihood of residual disease being found when additional tissue is removed. Up to 70 percent of patients with HER2-positive breast cancer respond to treatment. However, total remission for the condition occurs only in around 7 to 8 percent of patients. Targeted treatments (medicines that target the HER2 protein, like the Herceptin I was treated with) have improved the prognosis for HER2-positive patients. Remissions can also be lengthy, offering another bright spot in prognosis and reports show that remission can last more than 15 years for some patients.

tabletI was diagnosed HER2-positive and this brings special challenges in my recovery from breast cancer. The HER2 protein can make the breast cancer more aggressive. It can also make it harder to treat with hormone treatments used for other types of breast cancer. However, drugs like trastuzumab (Herceptin) target HER2 directly and effectively. This drug, when used in combination with other drugs, shows some very promising results for improving prognosis and survival rates for patients with HER2 cancer. However, there is a small but real risk of heart damage and possible lung damage. Scientists are still studying how long women should take Herceptin for the greatest benefit. I am not ashamed to tell you that I hope their studies are successfully concluded soonest. I have a vested interest in this, as my tumour was HER-2 positive.

All in all, having made the decision to stay alive long enough to thoroughly embarrass my children, when the oncologist tells me that I must take one 2.5mg tablet of Letrozole each day for the next five years, I will do just that. Letrozole has side effects but I have decided that whatever they are, they have to be better than allowing the tumour to return.

Valerie Penny

A View of Cancer Care – Book Review – The Spare Room by Helen Garner

The Spare Room is a novel about caring for a friend with cancer by Australian writer Helen Garner. She is an Australian novelist, short-story writer, screenwriter and journalist who was born in Geelong, Australia on 7, November 1942. She is a graduate of the University of Melbourne. Garner’s first novel, Monkey Grip, was published in 1977, and immediately established her as an original voice on the Australian literary scene. The Spare Room is a story set over the course of three weeks while the narrator, Helen, cares for a friend dying of bowel cancer. The cancer sufferer can be very stubborn and selfish. It is a form of self-preservation. This story reflects this. The book was published in 2008.

I am a cancer survivor. I have written about my journey in https://survivingbreastcancernow.wordpress.com/. When I chose this book from the local library, I did not realise the topic it covered. I was not sure that I would be able to cope with it. However, The Spare Room is a magical gem of a book. It is gripping, moving, and unexpectedly funny. The book packs a huge punch, charting a friendship as it is tested by the threat of death.

The book made me think about how those who love had suffered when they were caring for me and watching my treatment and recovery. How much of they gave up to help me in my time of need. Likewise in this book, Helen has little idea what lies ahead and the strength she will need to muster when she offers her spare room to an old friend, Nicola. Helen arrives in plenty of time to pick Nicola up from the airport, but she wasn’t expecting to see her friend look so sick, so sick that she could hardly walk. Of course Nicola insists it was just the flight that has taken its toll on her and that she’ll be fine once she has a rest. Nicola has arrived in the city for cancer treatment. She is skeptical of the medical establishment, and placing all her faith in an alternative health center. Nicola will be attending The Theodore Institute where she she will undergo extensive alternative treatment for her cancer. She is convinced that after three weeks of this alternative treatment she will be cured of her cancer. The alternative treatment is high doses of vitamin C. Nicola is determined to find her own way to deal with her illness, regardless of the advice Helen offers.

Nicola explains to Helen how the treatment works and as far as Helen is concerned it is a load of rubbish. Helen knows that there is no miracle cure for the final stages of terminal cancer, but Nicola refuses to be convinced. However, after only a few treatments of vitamin C, Nicola starts to feel very sick and is in a lot of pain. In the weeks that follow, Nicola’s battle for survival will turn not only her own life upside down but also those of everyone around her.

She wakes during the night to sopping wet bedding from sweating and chronic pain. Each night Helen helps her change thehelen garner bedding and tries to comfort her, but her patience are wearing thin knowing this treatment will not work. As Nicola continues with the treatment, Helen becomes increasingly angry, frustrated and exhausted. She cannot seem to make Nicola see that this treatment is not only expensive, but is a waste of time. She only wants what is best for her friend:that is to make sure the time she has left is as pain free as possible.

Helen Garner’s book was a relatively quick read, but it definitely was not an easy read at times. A heartbreaking and powerful read about care, friendship and dying. The Spare Room is a book well worth reading.

This review originally appeared in Valerie Penny’s Book Reviews at: http://bookreviewstoday.info/2015/01/18/the-spare-room-by-helen-garner/.

Valerie Penny

Post Cancer Fatigue

Cancer related fatigue (CRF) is very common.   I had just no idea how long I would suffer from fatigue after my treatment had finished.  Fatigue can often be confused with tiredness, but there are differences between the two conditions.

chronic-fatigue

Tiredness happens to everyone, especially after certain activities or chemotherapy however,  fatigue is less common and is an excessive whole-body tiredness that is not relieved with sleep.   This debilitating condition can impact your quality of life. It certainly impacts upon mine.  I am still unable to walk for the kind of distances I did previously and only do half a line dancing class instead of a full one.  My 18 weeks of chemotherapy ended almost 10 months ago.

Fatigue can be acute (lasting a month or less) or chronic (lasting from one month to six months or longer).   Mine is clearly chronic.  The precise reason for this intensive tiredness is unknown, but practitioners believe it may be related to the process of cancer itself or chemotherapies and radiation treatments.  Although  CRF is one of the most common side effects of cancer and its associated treatments, nobody told me about it or warned me I might suffer from it.  Therefore, I thought I was just being lazy and not pulling myself together properly.   I was quite wrong.

Usually  it comes on suddenly, and does not result from activity or exertion.   Although in my case exertion makes it worse.  The fatigue is often described as “paralyzing.”  It may continue for months, even after treatment is complete.

If you are a cancer survivor and feeling tired or fatigued even long after your treatment is finished, you must know you are not alone.

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About one-third of breast cancer survivors experience CRF for periods of time ranging anywhere from a year to several years post-treatment.  While there is no conventional therapy to resolve it, studies are increasingly showing yoga and other gentle exercises can help. Some patients with different cancers report relief with exercise.

Valerie Penny

After Radiotherapy

It is hard to imagine a treatment that only lasts a few seconds, minutes if you count the set up time, causing after effects.  Believe me when I tell you that it does.  There are side effects of any medical treatments, of course.  With radiotherapy these can be quite frightening.  There is some concern that after treating the brain (particularly if combined with chemotherapy) the patient may develop memory problems.

Radiation therapy works by damaging the DNA (genes) of tumour cells.  DNA damage stops tumour cells from dividing, growing and spreading.  Radiotherapy is a useful tool for treating cancer because cancer cells grow and divide more rapidly than most normal cells around them.  Although some normal cells are affected by radiation, most normal cells appear to recover more fully from the effects of radiation than do cancer cells. Radiation oncologists carefully limit the intensity of treatments and the area being treated so that the cancer will be affected more than the normal tissues.  This is why the set up for the treatment often lasts longer than the treatment itself.

Modern radiotherapy has advanced dramatically over the recent years.  It is now possible to focus radiotherapy with extreme precision. This allows the radiation dose to be targeted to the areas of tumour while sparing most adjacent normal tissues even in seemingly complicated and difficult parts of the body.

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Radiotherapy affects different people to greater or lesser extents.  My friend Ismay, who is a real inspiration to me, is facing terminal cancer with and bravery that is awe-inspiring.  She found the radiotherapy to her head (to shrink a brain tumour) really difficult.  She was left with burns to her scalp.  Her hair that had grown back after chemotherapy, was lost again and the burns to her head made it impossible to wear her wig for weeks.  The pain and distress were hard to bear: but bear it she did. along with some forgetfulness, with her relentless courage and humour.

My treatment was to my right breast.  It was targeted to the area from which my tumour had been removed.  I had been told the radiotherapy would make me feel tired.  I had also been told the effect was cumulative. Unsurprisingly, me being me, when I felt no particular effects after the first dose or so, I felt I had beaten the system.  I had been told the cumulative effects would also include burning to my skin.  Again, initially, I deduced my skin was different to everybody else’s.  It is    not.  However, the effects do not kick in immediately, but do last a long time after the treatment has finished.  Radiation_breast

I have found the after effects of the radiotherapy quite depressing.  The burning under my breast was soothed by aqueous cream but the skin burnt and peeled the way it might with sunburn.  I am now six moths out after radiotherapy has finished.  The burns are healed but my breast still looks tanned compared to the other and I still find I get tired far faster than I expected this far on.  I still cannot walk as far as I used to.  One of my favourite hobbies is dancing, but I cannot dance for as long or as energetically as I did before my treatment.

I continue to find it difficult to concentrate for prolonged periods and the exhaustion is debilitating.  I was becoming increasingly upset about this and was speaking to my friend Margaret.  Margaret survived breast cancer and got her all clear about eighteen months ago.  She has been immensely supportive during my cancer journey.  The wonderful Margaret told me that, even yet, she gets bone tired sometimes.  It is not like the tiredness you feel after a busy day or a late night.  It is a wave of weariness that is all encompassing.  The big problem is it can arrive, unannounced, at any time.  So I have no confidence that, if I start a long or complicated task, I will have the energy to finish it.  This is what I find most exasperating.

However, the side effect that I had feared most was depression.  When the radiotherapy comes to an end, you come off the treatment merry-go-round.  All the attention stops and this can cause the depression the doctors and nurses warned me about.  I suppose when you have been using all your energies to defeat this disease, when it comes to an end so suddenly, it can result in an emotional vacuum.  I have mental health problems anyway and I really feared this problem.  I was lucky, it did not happen to me.  Other friends were not so lucky.  They did feel the sudden stop of treatment and attention left a void that led to depression.

Now I am at the stage where I get check up appointments with the consultant approximately every three months. Before I see the consultant I go to the hospital for an echo scan.  It is also called an echo-cardiogram is an ultrasound scan of the heart. It is sometimes just called an ‘ECHO’. Ultrasound is a very high-frequency sound that you cannot hear, but it can be emitted and detected by special machines. The scan can give accurate pictures of the heart muscle, the heart chambers, and structures within the heart such as the valves.  An ECHO can be carried out for many different reasons.   I have it done to check how well your heart is working after the radiotherapy and to look at how well the valves are moving inside the heart.   An ECHO can also help to see any fluid that may have collected around the heart.  So far my heart is holding up well.

I need to undress to the waist and lie on the couch. A probe is placed on my chest (it is a bit like a very thick blunt pen).   Also, lubricating jelly is put on the probe so it makes good contact with the skin.   The probe is connected by a wire to the ultrasound machine and monitor.   Pulses of ultrasound are sent from the probe through the skin towards your heart. The ultrasound waves then echo (‘bounce back’) from the heart and various structures in the heart.  They make a sort of swooshing noise.

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The consultant also arranges for my blood to be checked to make sure my calcium and haemoglobin levels are high enough.  So far, so good.  This is especially important because for the next five years I require to take a medication known as letrozole.   Amongst the more common side effects of letrozole are hot flushes, hair loss, joint and bonepain, muscle pain, tiredness, unusual sweating, nausea, diarrhea, dizziness, and trouble sleeping.  I have certainly suffered the tiredness as well as the joint, bone and muscle pain.   I was told by other patients it should lessen after 8-10 months.  The doctors have not confirmed this!

So I have complained about my difficulties and honestly reported my progress.  I am aware that I am very lucky. The disease was diagnosed early after a mammogram.  The necessary surgery was carried out quickly.  I am to get another mammogram later this month to confirm that I continue to survive breast cancer now.

Valerie Penny

 

 

 

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